HELP US TO MAKE A DIFFERENCE in 2016!
Click on the blue button to make a direct deposit OR
set up a page on 'GoFundraise'.
You can create your own page and fundraise for an event such as ‘Colour Fun Run’ and Marathon Fun Runs (in all states), In Memory of a Loved One or as a Personal Challenge on the ‘Making a Difference’ page OR you can set up a personal ‘Seasons Giving Appeal’ and ask people to donate instead of getting useless presents that you will probably have to recycle. Why not help us instead to achieve bigger goals.
Making a Difference starts with YOU!
Organise your own Fundraiser at GoFundraise.
We are always in need of celebrities to support the cause. You don't have to have lupus to show your support.
CAN YOU HELP?
LUPUS DOCUMENTARY "BUT YOU DON'T LOOK SICK!"
Raising Awareness for Lupus.
As many of you know, Jeda Cacioli has produced a documentary in conjunction with Lupus Foundation. The documentary is currently being shown at film festivals and will have its official public launch soon.
The Foundation wishes to acknowledge Jeda for her tremendous effort and express our deep sadness of the passing of one of the contributors, John Haigh.
Hot Off The Press!!! A massive congratulations to Jeda for winning Best Human Relationship Documentary at Star Doc International Film Festival in LA, USA.
WALTER & ELIZA HALL INSITITUTE of MEDICAL RESEARCH TOUR
Lupus Foundation are organizing a tour of the premises of the ‘Walter & Eliza Hall Institute of Medical Research’. There are a number of researchers working towards solutions for lupus. This is an opportunity to meet with the researchers and witness first-hand what it is they do.
Looking for people with lupus willing to attend medical lectures to provide an insight from a patient’s prospective to medical students about their condition.
Lectures will be held at The Alfred Centre - 99 Commercial Rd, Melbourne. (The Alfred Hospital).
If you are interested email: firstname.lastname@example.org
CLINICAL RESEARCH TRIAL: Belimumab (Benlysta®) Pregnancy Research Study
Participating in a clinical research study contributes to medical knowledge related to the treatment, diagnosis and prevention of diseases or conditions. The results of these studies can make a difference in the care of future patients by providing information about the benefits and risks of therapeutic, preventative or diagnostic products or interventions.
Research is the key to improving the lives of those living with lupus. Now there is a study called the Belimumab (Benlysta®) Pregnancy Registry, which is an observational study that will further evaluate the safety and effectiveness of belimumab (Benlysta®) in women who have been given (exposed to) belimumab (Benlysta®) within the 4 months prior to and/or during pregnancy. The goal of the registry is to evaluate the health of these women until they give birth, and to study the health of their babies until they are 12 months old. Participants will not have to make any extra office visits, take any extra medical tests or medications by taking part in this pregnancy registry.
Learn more about this study evaluating the health of pregnant women with lupus who have received belimumab (Benlysta®) and their babies.
For more information, click on here: belimumab-studies
NSW CITY2SURF SUNDAY 14 AUGUST 2016
There is a group who will be fundraising for Lupus Foundation in the City2Surf in NSW. If you are interested in joining the Lupus Butterflies group, please let us know. If you don’t want to fundraise and want to participate, you can also join. However, you are required to purchase and wear our lupus awareness t-shirt to promote lupus. People fundraising will get a free t-shirt to wear. If you are interested email us on email@example.com.
ABC Radio Lupus Interview Friday 24 June 2016
Thank you Caroline Salisbury and Alex Sloan (presenter) for the 30 min segment on lupus. Lupus Interview with our medical advisor Prof. Matthew Cook lupus researcher/Immunologist and Keren Dando. Click on link to listen: alex-sloan-chats-with-Prof. Matthew Cook and Keren Dando
South Eastern City of Casey Support Group Meeting
Saturday 25 June 2016
Time: 1 - 3pm
The Corner Post Café 19-20 Wood Street, Beaconsfield Contact: Lisa 0402 215 414
Genetics and Immune Diseases
Free Seminar (inc. lupus)
Sunday 24 July 2016
Time: 3pm - 4:45pm (estimated finish time)
Venue: Monash Health Translation Precinct, Translational Research Facility, 246 Clayton Road, Clayton, Victoria.
The talks will be followed by light refreshments.
Topic: How the immune system works, and how genetic changes influence the development of autoimmunity and
Speakers: Professor Carola Vinuesa, widely recognised for her contribution to the field of autoimmunity and lupus. Professor Matthew Cook & Professor David Fulcher.
Please register to attend at:
Genetics & Immune Diseases Seminar
Pathogenesis of Immunological Disease
Paid Seminar (inc. lupus)
23-24 July 2016
The School of Personalised Immunology is a one and a half day course aimed at educating scientists, undergraduate students, clinicians, GPs, medical registrars, medical students, etc. with NO prior knowledge on the latest technologies in genomic medicine as it applies to the pathogenesis of immunological disease.Venue: Translational Research Facility, Monash Health Translation Precinct
Monash Health Centre, 246 Clayton Road, Clayton, Victoria
Full registration: $175, Student registration: $100
Dinner on the 23rd July (optional): $85*
*The dinner is not included in the registration fee. A 3-course dinner will be held at Huntingdale Golf Club (Windsor Avenue, Oakleigh South, Vic) at 6pm for a 6:30pm Click here to Register & for Program.
LUPUS 'WIGS for KIDS' Challenge
Please grow out your hair, for those whose hair remains bare."
Lupus 'Wigs for Kids' Challenge is a permanent ongoing lupus fundraiser. Participation is open to anyone world-wide.
Participants are asked to sponsor and grow their locks to a minimum length of 30 cm and then donate their hair to make medical wigs for the ‘Wigs for Kids’ program supporting kids with lupus, cancer, alopecia areata and other illnesses. As part of the program, the kids are given a voucher to the total amount of $400 to use at selected wig makers.
AND, if you don’t have hair to give, you can still fundraise and we will still provide you with your own fundraising page AND if that seems like too much hard work, you can also donate funds, products for auctions and items for our gift bags for our functions and events.
So, there’s plenty of ways to show your support.
(refer to Lupus 'Wigs for Kids' Challenge for more information)
WEGO HEALTH ACTIVIST AWARDS 2014/2015
Once again we are proud to partner with WEGO Health in the Annual WEGO Health Activist Awards representing the lupus community, world-wide.
WEGO Health is an American based online network comprised of Health Activists – leaders and influencers within the online health community – The Annual Health Activist Awards recognizes and rewards those who have made a difference.
“Bringing Awareness and Recognition
to Our Community”
Encouraging pregnant women to donate their umbilical cord and placenta!
Lupus Foundation will embark on its most ambitious project to date,
‘Increasing Cord Blood Stem Cells in Australia.’ for Lupus Stem Cell Treatment & Research.
This is a major project that will benefit ALL illnesses. Read more under 'Our Services'.
ALL SPORTS AUCTIONS
Thank you to Brae Lukav
All Sports Auctions for helping us to promote lupus awareness at his functions. We truly appreciate it.
Click on poster to go to their website.