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SOUTH AUSTRALIA - MOUNT GAMBIER
LUPUS FOUNDATION - Support Group
10 - 12 November 2015
REGISTER YOUR INTEREST!
WALTER & ELIZA HALL INSITITUTE of MEDICAL RESEARCH TOUR
Lupus Foundation are organizing a tour of the premises of the ‘Walter & Eliza Hall Institute of Medical Research’. There are a number of researchers working towards solutions for lupus. This is an opportunity to meet with the researchers and witness first-hand what it is they do.
CAN YOU HELP?
Looking for people with lupus willing to attend medical lectures to provide an insight from a patient’s prospective to medical students about their condition.
Lectures will be held at The Alfred Centre - 99 Commercial Rd, Melbourne. (The Alfred Hospital).
If you are interested email: firstname.lastname@example.org
CLINICAL RESEARCH TRIAL: Belimumab (Benlysta®) Pregnancy Research Study
Participating in a clinical research study contributes to medical knowledge related to the treatment, diagnosis and prevention of diseases or conditions. The results of these studies can make a difference in the care of future patients by providing information about the benefits and risks of therapeutic, preventative or diagnostic products or interventions.
Research is the key to improving the lives of those living with lupus. Now there is a study called the Belimumab (Benlysta®) Pregnancy Registry, which is an observational study that will further evaluate the safety and effectiveness of belimumab (Benlysta®) in women who have been given (exposed to) belimumab (Benlysta®) within the 4 months prior to and/or during pregnancy. The goal of the registry is to evaluate the health of these women until they give birth, and to study the health of their babies until they are 12 months old. Participants will not have to make any extra office visits, take any extra medical tests or medications by taking part in this pregnancy registry.
Learn more about this study evaluating the health of pregnant women with lupus who have received belimumab (Benlysta®) and their babies.
For more information, click on here: belimumab-studies
WEGO HEALTH ACTIVIST AWARDS 2014/2015
Once again we are proud to partner with WEGO Health in the Annual WEGO Health Activist Awards representing the lupus community, world-wide.
WEGO Health is an American based online network comprised of Health Activists – leaders and influencers within the online health community – The Annual Health Activist Awards recognizes and rewards those who have made a difference.
“Bringing Awareness and Recognition
to Our Community”
LUPUS DOCUMENTARY "BUT YOU DON'T LOOK SICK!"
Raising Awareness for Lupus.
As many of you know, Jeda Cacioli has been producing a documentary in conjunction with the Foundation and it’s almost ready to take it to the world! However, an addition funding amount of $3,000 is required. If you can help, please go to:
AUSTRALIA DAY PARADE 2016
Walk for Lupus Awareness!
REGISTER YOUR INTEREST NOW!
Assemble 9:30-10a.m. Commence approx. 11 a.m. after Flag Raising Ceremony at Melbourne Town Hall.
START: cnr Lt. Collins Street, travelling down Swanston St
ENDS: Kings Domain Gardens. (CBD)
Once again we will be donning our wings & walking for Lupus Awareness.
Participants will be required to wear our Lupus Awareness T-Shirt, our Australia Day Akubra Hat & Butterfly Wings (optional). This will be provided by the Foundation.
Email: email@example.com. Note, priority to participate will be given to those that have registered for the 2015 lupus walk. An email will be sent to all registered walkers.
WORLD LUPUS DAY- ACTIVITIES
Thank you to Natalie and Monique Cromb who will be our Lupus Ambassadors for the 'Chronic Disease and Tobacco Conference' in Sydney, NSW. 3-5 May 2016.
“Bringing Awareness and Recognition to Our Community”
ABORIGINAL HEALTH WORKSHOP
Aboriginal Health and Medical Research Council will be running a workshop on Friday, 13 November in NSW.
We are looking for an Aboriginal lupus ambassador/spokesperson.
Lupus Wigs for Kids Challenge/Program
Felicity who owns and runs a café and fresh produce store in Meeniyan, South Gippsland has set herself a challenge that most of us would run from. Yes, the 30 year old is shaving her hair for the Lupus ‘Wigs for Kids’ Program.
Felicity was diagnosed in 2010 with one of her first symptoms being hair loss/thinning. When her thick glorious locks, taking 10 years to grow began to dwindle away causing her stress levels to increase, Felicity decided it’s time to let go.
Hence, on Sunday, 4 October as part of October, Lupus Awareness Month, Felicity will shave her beautiful locks with the help of her friend, Catherine Denbrok Waldron of Catherine's Hair Techniques.
To Donate to Felicity’s Challenge:
* A fundraising page will be set up for Felicity in the next couple of weeks. However, you can still donate via:
1. Felicity’s store:
The Meeniyan Store - 106 Whitelaw Street, Meeniyan, Vic
Closed Mon, Open Tues-Sat, 10 – 5pm, Sun 10 - 4pm. https://www.facebook.com/meeniyanstore
2. Direct Deposit to Lupus Foundation Account. Please include Felicity’s name when donating.
Bank: ANZ BSB: 013-268 Account Number: 4549-04178
MOOMBA BIRDMAN RALLY 2016
Sunday, 13 March
Who Will Fly and Who Will Flop! Where Man and Bird err Butterfly (sub)merge!
Looking for one or maybe two brave souls to jump for Lupus Awareness! And, a team OR creative individual to put together a lupus flying machine.
The Birdman Rally is a competition for home-made gliders, hand gliders, human-powered aircraft, fan-dangled flying machines and super heroes!
Birdman Rally is a Melbourne institution and is one of the main highlights of the Moomba Festival drawing huge crowds every year.
Let’s make our mark next year and take one big giant leap for Lupus Awareness! Feel free to download and share poster. Email interest to: firstname.lastname@example.org
Encouraging pregnant women to donate their umbilical cord and placenta!
Lupus Foundation will embark on its most ambitious project to date,
‘Increasing Cord Blood Stem Cells in Australia.’ for Lupus Stem Cell Treatment & Research.
This is a major project that will benefit ALL illnesses. Read more under 'Our Services'.
LUPUS 'WIGS for KIDS' Challenge
Please grow out your hair, for those whose hair remains bare."
Lupus 'Wigs for Kids' Challenge is a permanent ongoing lupus fundraiser. Participation is open to anyone world-wide.
Participants are asked to sponsor and grow their locks to a minimum length of 30 cm and then donate their hair to make medical wigs for the ‘Wigs for Kids’ program supporting kids with lupus, cancer, alopecia areata and other illnesses. As part of the program, the kids are given a voucher to the total amount of $400 to use at selected wig makers.
AND, if you don’t have hair to give, you can still fundraise and we will still provide you with your own fundraising page AND if that seems like too much hard work, you can also donate funds, products for auctions and items for our gift bags for our functions and events.
So, there’s plenty of ways to show your support.
(refer to Lupus 'Wigs for Kids' Challenge for more information)